All,
I have a patient with exactly the same symptoms- incapacitating “white noise” to vision, except this patient is NLP in one eye from endophthalmitis in remote past and HM other eye from glaucoma.
She is begging to be “back to Glaucoma darkness “
We have done anti seizure meds and now will try Botox.
She had + enolase and was treated with steroids and plex but got only momentary relief, if any.
What is light desensitization therapy?
Thank you for any thoughts from your experience.
Martha Schatz
Sent from my iPhone
Original Message:
Sent: 6/23/2025 5:25:00 PM
From: Lee Klombers
Subject: RE: Occipital neuralgia?
Aloha !
Was a Shirmer test performed?
Lee Klombers, MD
Neuro-Oph, Adult Strab, Peds Ophth
Retired
Original Message:
Sent: 6/23/2025 5:12:00 PM
From: Andrew Carey
Subject: RE: Occipital neuralgia?
Sounds like he needs systematic desensitization to light adaptation and migraine evaluation.
Best,
Drew
Original Message:
Sent: 6/23/2025 4:27:00 PM
From: Scott Forman
Subject: RE: Occipital neuralgia?
I would test him for Bartonella using immunoblot, not standard testing which is far inferior. Igenex makes an excellent kit to do immunoblot testing.
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Scott Forman, MD
Senior Fellow North American Neuro-ophthalmology Society
Adult and Pediatric Neuro-ophthalmology
Comprehensive Ophthalmology
Functional Medicine
Original Message:
Sent: 6/23/2025 4:12:00 PM
From: Steven Kane
Subject: Occipital neuralgia?
I saw a particularly vexing patient today because of light sensitivity that seems disproportionate to the history and physical findings. Athletic in appearance and previously active in soccer and golf.
He now wears category 4, wraparound sunglasses pretty much all the time that he would not remove in my pretty dim exam room. He could read 20/20 OD through them but needed to switch to his category 3 lenses to read 20/20 OS. Part of my concluding remarks from the first visit 2 years ago:
"... structurally healthy eyes... generally healthy young man who has experienced intermittent head and eye pains that have been attributed to occipital neuralgia. The onset of this condition is mysterious. He has not sustained neck or head trauma and is not felt to have a generalized inflammatory condition. His vision is excellent and his eyes are structurally healthy. The uncorrected acuities are good with evidence of binocularity. Spectacles are not needed."
He would not remove his lenses for examination today. So we talked for a while.
He had disappeared into the world of neuro-optometry and vision therapy after our one and only meeting 2 years ago. The ensuing optometry treatments that include various colored lenses and convergence exercises did not lessen his light sensitivity. 5 MRI studies to date all report normal head and neck structures. The last study found some herniated discs in the thoracic region that he attributes to playing golf. Mild neck flexion to read books seems to make his light sensitivity worse. Reading from screens is too unbearable. He anticipates, probably correctly, that reading from screens will be unavoidable at college. His grades have always been great in high school and he is interested in language arts as a major in college, a curious interest for someone who says he does not like to read. I don't think any consideration was ever given to a reading-based learning disorder. Beyond recommending some dynamic plain films to study the cervical spine in various positions, I'm stumped. A functional component remains a consideration.
Any suggestions how to help me to help this young man would be appreciated.
Cheers,
Steven Kane