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  • 1.  ALS

    Posted 09-25-2025 12:31
    I have a patient that was recently diagnosed with ALS by her neurologist. While I don’t see many of these patients in my clinic I occasionally have them referred due to blurred vision. Visually she is doing well but was asking me about what centers in the USA are doing studies or at least focus on ALS. Anyone have a good recommendation for this over what comes up on google (Mayo, Michigan, Miami, and the ALS society).
    Thank you

    Jody Abrams


  • 2.  RE: ALS

    Posted 09-25-2025 12:55
    Hi Jody, 

    Our center at the Barrow Neurological Institute - the Gregory W. Fulton Neuromuscular Center has specialists who treat ALS patients and enroll them in clinical trials. Shafeeq Ladha is the division director and also who actively enrolls patients in various trials that are on going. If interested, feel free to message separately (pateliteasu@gmail.com) and I can give you relevant contact details, etc. 

    Warm regards,



    Jay N. Patel, MD
    Barrow Neurological Institute, Neuro-Ophthalmology Division 





  • 3.  RE: ALS

    Posted 09-25-2025 13:09
    Hopkins also has a great ALS center that is involved in clinical trials.

    N



    Original Message


  • 4.  RE: ALS

    Posted 09-25-2025 17:25
    California Pacfic Medical Center has the Forbes Norris ALS Research and Treatment Center.

    August L. Reader III, MD, FACS





    Original Message


  • 5.  RE: ALS

    Posted 09-27-2025 22:13
    One of the largest national centers for ALS is here at MGH, with multiple trials. 
    Best,
    Bart



    Bart K. Chwalisz, M.D.

    Neuro-ophthalmology, Headache Unit, and Skull Base Disorders Clinic. Division of  Neuroimmunology, Massachusetts General Hospital/Harvard Medical School

    https://www.massgeneral.org/neurology/treatments-and-services/inflammatory-neuroophthalmology-and-skull-base-disorders-clinic

    Neuro-ophthalmology, Massachusetts Eye & Ear Infirmary/Harvard Medical School

    Neurology, Martha's Vineyard Hospital

     




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  • 6.  RE: ALS

    Posted 09-29-2025 11:53

    Dear all

    What recommendations if any don't give to patient on diamox who want to scuba dive?

    Thanks

    Peter. 
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