Hi,
This is so unusual – I have seen 3 men in the past week who I think have LHON (and my denominator is small). Genetic testing was ordered on all of them.
I looked on clincaltrials.gov and did not see any trials that are currently recruiting in the U.S.
If you are aware of any clinical trials currently looking for participants, please contact me privately.
Also, if you can recommend a reputable source for idebenone, I would like to pass the information on to my patients.
Thank you!
Deb
DeborahFriedman@tx.rr.com