NANOSNET

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has anyone seen this combination?

  • 1.  has anyone seen this combination?

    Posted 4 hours ago

    18 yo who had  temporal AVM that bled and recurrent nosebleeds who had classic fundi for Wyburn Mason who I diagnosed a decade ago and who then disappeared.

    She has now returned and has recently been found to have bilateral acoustic neuromas.

    NF-2 genetic testing was negative