NANOSNET

Hi all,

I’ve had so much trouble getting dalfampridine for my downbeat nystagmus patients. Can anyone help me with how you are prescribing and/or getting it approved? I’ve tried multiple specialty pharmacies and compounding pharmacies for 3,4-DAP but haven’t had any luck.

Thanks so much!

Brooke T. Johnson, DO

Original Message:
Sent: 10/17/2025 4:13:00 PM
From: Brooke Johnson
Subject: dalfampridine

Hi all,

I’ve had so much trouble getting dalfampridine for my downbeat nystagmus patients. Can anyone help me with how you are prescribing and/or getting it approved? I’ve tried multiple specialty pharmacies and compounding pharmacies for 3,4-DAP but haven’t had any luck.

Thanks so much!

Brooke T. Johnson, DO

Original Message:
Sent: 10/17/2025 4:16:00 PM
From: Scott Forman
Subject: RE: dalfampridine

I have had the same incredible problem with United Health Care. The patient failed baclofen and I am on my second appeal for this drug. The first appeal set me up with a pharmacist's technician and pharmacist. What ridiculous waste of my time. Neither of course even knew what downbeat nystagmus was.

+=+=+=+=+=+=+=+=+=+=+=+=+=+=+=+=+=+=+=+=

Scott Forman, MD

Senior Fellow North American Neuro-ophthalmology Society

Adult and Pediatric Neuro-ophthalmology

Comprehensive Ophthalmology

Functional Medicine

Original Message:
Sent: 10/17/2025 4:13:00 PM
From: Brooke Johnson
Subject: dalfampridine

Hi all,

I’ve had so much trouble getting dalfampridine for my downbeat nystagmus patients. Can anyone help me with how you are prescribing and/or getting it approved? I’ve tried multiple specialty pharmacies and compounding pharmacies for 3,4-DAP but haven’t had any luck.

Thanks so much!

Brooke T. Johnson, DO

Original Message:
Sent: 10/17/2025 4:16:00 PM
From: Scott Forman
Subject: RE: dalfampridine

I have had the same incredible problem with United Health Care. The patient failed baclofen and I am on my second appeal for this drug. The first appeal set me up with a pharmacist's technician and pharmacist. What ridiculous waste of my time. Neither of course even knew what downbeat nystagmus was.

+=+=+=+=+=+=+=+=+=+=+=+=+=+=+=+=+=+=+=+=

Scott Forman, MD

Senior Fellow North American Neuro-ophthalmology Society

Adult and Pediatric Neuro-ophthalmology

Comprehensive Ophthalmology

Functional Medicine

Original Message:
Sent: 10/17/2025 4:13:00 PM
From: Brooke Johnson
Subject: dalfampridine

Hi all,

I’ve had so much trouble getting dalfampridine for my downbeat nystagmus patients. Can anyone help me with how you are prescribing and/or getting it approved? I’ve tried multiple specialty pharmacies and compounding pharmacies for 3,4-DAP but haven’t had any luck.

Thanks so much!

Brooke T. Johnson, DO

Original Message:
Sent: 10/17/2025 4:36:00 PM
From: Eric Eggenberger
Subject: RE: dalfampridine

I stopped chasing dalfampridine PA when mark Cuban cost plus pharmacy offered for $11/month:

https://www.costplusdrugs.com/medications/dalfampridine-er-10mg-tablet/index.html

E2

Original Message:
Sent: 10/17/2025 4:16:00 PM
From: Scott Forman
Subject: RE: dalfampridine

I have had the same incredible problem with United Health Care. The patient failed baclofen and I am on my second appeal for this drug. The first appeal set me up with a pharmacist's technician and pharmacist. What ridiculous waste of my time. Neither of course even knew what downbeat nystagmus was.

+=+=+=+=+=+=+=+=+=+=+=+=+=+=+=+=+=+=+=+=

Scott Forman, MD

Senior Fellow North American Neuro-ophthalmology Society

Adult and Pediatric Neuro-ophthalmology

Comprehensive Ophthalmology

Functional Medicine

Original Message:
Sent: 10/17/2025 4:13:00 PM
From: Brooke Johnson
Subject: dalfampridine

Hi all,

I’ve had so much trouble getting dalfampridine for my downbeat nystagmus patients. Can anyone help me with how you are prescribing and/or getting it approved? I’ve tried multiple specialty pharmacies and compounding pharmacies for 3,4-DAP but haven’t had any luck.

Thanks so much!

Brooke T. Johnson, DO

Original Message:
Sent: 10/17/2025 4:36:00 PM
From: Eric Eggenberger
Subject: RE: dalfampridine

I stopped chasing dalfampridine PA when mark Cuban cost plus pharmacy offered for $11/month:

https://www.costplusdrugs.com/medications/dalfampridine-er-10mg-tablet/index.html

E2

Original Message:
Sent: 10/17/2025 4:16:00 PM
From: Scott Forman
Subject: RE: dalfampridine

I have had the same incredible problem with United Health Care. The patient failed baclofen and I am on my second appeal for this drug. The first appeal set me up with a pharmacist's technician and pharmacist. What ridiculous waste of my time. Neither of course even knew what downbeat nystagmus was.

+=+=+=+=+=+=+=+=+=+=+=+=+=+=+=+=+=+=+=+=

Scott Forman, MD

Senior Fellow North American Neuro-ophthalmology Society

Adult and Pediatric Neuro-ophthalmology

Comprehensive Ophthalmology

Functional Medicine

Original Message:
Sent: 10/17/2025 4:13:00 PM
From: Brooke Johnson
Subject: dalfampridine

Hi all,

I’ve had so much trouble getting dalfampridine for my downbeat nystagmus patients. Can anyone help me with how you are prescribing and/or getting it approved? I’ve tried multiple specialty pharmacies and compounding pharmacies for 3,4-DAP but haven’t had any luck.

Thanks so much!

Brooke T. Johnson, DO

Original Message:
Sent: 10/17/2025 4:13:00 PM
From: Brooke Johnson
Subject: dalfampridine

Hi all,

I’ve had so much trouble getting dalfampridine for my downbeat nystagmus patients. Can anyone help me with how you are prescribing and/or getting it approved? I’ve tried multiple specialty pharmacies and compounding pharmacies for 3,4-DAP but haven’t had any luck.

Thanks so much!

Brooke T. Johnson, DO