Drs. Friedman and Singman, thank you both very much for your thoughtful input and recommendations. Just to clarify, I am not directly involved in her care and have not personally reviewed her imaging or medical records; this was simply a quick phone consult while trying to help connect her with a neuro-ophthalmologist closer to her in Connecticut.
Best,
KG
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Regards,
Kemar E. Green, DO, FANA
Rare & Complex Disease Neurologist | Neuro-Ophthalmologist | Oto-Neurologist
Founder & CEO | NeuroAgent AI, Inc. |HazyEyes, Inc.
Affiliate Faculty, JHU Data Science & AI Institute
Former Assistant Professor of Neurology, Johns Hopkins University
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Original Message:
Sent: 04-17-2026 11:53
From: Deborah Friedman
Subject: Connecticut neuro-ophthalmology/oto-neurology referral request
MRI brain needs to be done with contrast (sounds like she at least already had a contrast scan – can you post the midline sagittal T1-weighted image?)
Spine MRI – specify looking for a CSF leak, needs STIR (heavily weighted T2, fat suppressed) images and a neuroradiologist who is familiar with looking for leaks.
Deb
Original Message:
Sent: 4/17/2026 11:49:00 AM
From: Eric Singman
Subject: RE: Connecticut neuro-ophthalmology/oto-neurology referral request
And check for Ehlers Danlos or Marfans if there is a confirmed leak. And an MRI spine and brain with contrast could help confirm leak.
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EricSingmanESingman@som.umaryland.edu
Original Message:
Sent: 04-17-2026 11:46
From: Deborah Friedman
Subject: Connecticut neuro-ophthalmology/oto-neurology referral request
It sounds like she has a spinal CSF leak!
Deb
Original Message:
Sent: 4/16/2026 9:25:00 PM
From: Kemar Green
Subject: Connecticut neuro-ophthalmology/oto-neurology referral request
Dear NANOS community,
I am seeking help identifying a neuro-ophthalmologist in CT, ideally with some oto-neurology/vestibular neurology expertise, for a patient who is a friend of a friend. She is a young woman in her mid- to late 30s with hx of migraines, retinal detachments, episodic photopsias OU, positional dizziness, and recent MRI brain showing >8 mm cerebellar tonsillar ectopia sans syrinx on spine MRI. BMI >25. She is seeking evaluation by a neuro-ophthalmologist. Any recommendations would be greatly appreciated.
Best,
KG
------------------------------
Regards,
Kemar E. Green, DO, FANA
Rare & Complex Disease Neurologist | Neuro-Ophthalmologist | Oto-Neurologist
Founder & CEO | NeuroAgent AI, Inc. |HazyEyes, Inc.
Affiliate Faculty, JHU Data Science & AI Institute/IDIES
Former Assistant Professor of Neurology, Johns Hopkins University
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