Heather
I have attended the session and it was wonderful and may be we need more in Neuro-ophthalmology- psychology approach to patients , I refer cases who needs care , beyond that my capability , to a psychologist for treatment because for example , the fear of an attack issue in MS patients that sometimes deceives some younger doctors into giving aggressive treatments while many time it is psychosomatic symptom , needs reassurance only or nay need actuall treatment with a psychologist ,
Sherif
On Thursday, November 20, 2025, 10:22 AM, Sherif Ahmed Kamel Abdelbar via North American Neuro-Ophthalmology Society <Mail@ConnectedCommunity.org> wrote:
Alfredo , it was my pleasure really meeting you in person in Tuscon an honour that I didn't have b foe , but I wanted to ask about and old book...
| Re: Ice cream? | | | | | Alfredo , it was my pleasure really meeting you in person in Tuscon an honour that I didn't have b foe , but I wanted to ask about and old book calledcl psychology of vision , I came across it while I was a resident , 35 years ago, are Sir, aware of this book because really I want to get a copy, it affected my view of treating patients so much , Thank you Sir for the references Sherif On Thursday, November 20, 2025, 10:17 AM, Sherif Ahmed Kamel Abdelbar via North American Neuro-Ophthalmology Society <Mail@ConnectedCommunity.org> wrote: Riri , this a wonderful story , we have here lots of LHON and other hereditary neuropathies , and fathers and mothers they came devastated by the... -posted to the "NANOSNET" community | Re: Ice cream? | | | | | Riri , this a wonderful story , we have here lots of LHON and other hereditary neuropathies , and fathers and mothers they came devastated by the new that options are limited , few months ago I had a child with LHON , Nystagmus and really a very good vision but was cruelly told by a paediatric ophthalmologist that you child will be blind and there is nothing to do about it, my approach in those cases is never to say so directly , while trying to give whatever the literature pointed to as a treatment and really explaining that to the family , I keep telling then that your child is seeing and that while complete blindness is a possibility but so many patient may remain seeing all their life and that options to go on studying are present like low vision aides and that some treatments may get some results is some cases and we can be among those cases , while addressing that thing are not going to be normal , living in complete darkness is a ' remote' possibility , this family gave their child glasses and I prescribed available treatments with brinzolamide for nystagmus , this child came back after one month playing around the clinic , very naughty , flipping every thing around , I wouldn't mind seeming him trying to get my trial lenses to the ground while me and his parents laughing about the blind child that he was told about by some really cruel doctor , after going to another paediatric ophthalmologist, without low vision aides this child is back to school , his family is happy to the extent they wanted to visits me weekly and were unhappy that I told them we need only 3 monthly visits Thank you RIri and Deb again
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Original Message:
Sent: 11/20/2025 1:51:00 AM | |
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Original Message:
Sent: 11/20/2025 3:22:00 AM
From: Sherif Ahmed Kamel Abdelbar
Subject: RE: Ice cream?
Alfredo , it was my pleasure really meeting you in person in Tuscon an honour that I didn't have b foe , but I wanted to ask about and old book calledcl psychology of vision , I came across it while I was a resident , 35 years ago, are Sir, aware of this book because really I want to get a copy, it affected my view of treating patients so much ,
Thank you Sir for the references
Sherif
On Thursday, November 20, 2025, 10:17 AM, Sherif Ahmed Kamel Abdelbar via North American Neuro-Ophthalmology Society <Mail@ConnectedCommunity.org> wrote:
Riri , this a wonderful story , we have here lots of LHON and other hereditary neuropathies , and fathers and mothers they came devastated by the... -posted to the "NANOSNET" community
| Re: Ice cream? | | | | | Riri , this a wonderful story , we have here lots of LHON and other hereditary neuropathies , and fathers and mothers they came devastated by the new that options are limited , few months ago I had a child with LHON , Nystagmus and really a very good vision but was cruelly told by a paediatric ophthalmologist that you child will be blind and there is nothing to do about it, my approach in those cases is never to say so directly , while trying to give whatever the literature pointed to as a treatment and really explaining that to the family , I keep telling then that your child is seeing and that while complete blindness is a possibility but so many patient may remain seeing all their life and that options to go on studying are present like low vision aides and that some treatments may get some results is some cases and we can be among those cases , while addressing that thing are not going to be normal , living in complete darkness is a ' remote' possibility , this family gave their child glasses and I prescribed available treatments with brinzolamide for nystagmus , this child came back after one month playing around the clinic , very naughty , flipping every thing around , I wouldn't mind seeming him trying to get my trial lenses to the ground while me and his parents laughing about the blind child that he was told about by some really cruel doctor , after going to another paediatric ophthalmologist, without low vision aides this child is back to school , his family is happy to the extent they wanted to visits me weekly and were unhappy that I told them we need only 3 monthly visits Thank you RIri and Deb again
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Original Message:
Sent: 11/20/2025 1:51:00 AM | |
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Original Message:
Sent: 11/20/2025 3:17:00 AM
From: Sherif Ahmed Kamel Abdelbar
Subject: RE: Ice cream?
Riri , this a wonderful story , we have here lots of LHON and other hereditary neuropathies , and fathers and mothers they came devastated by the new that options are limited , few months ago I had a child with LHON , Nystagmus and really a very good vision but was cruelly told by a paediatric ophthalmologist that you child will be blind and there is nothing to do about it, my approach in those cases is never to say so directly , while trying to give whatever the literature pointed to as a treatment and really explaining that to the family , I keep telling then that your child is seeing and that while complete blindness is a possibility but so many patient may remain seeing all their life and that options to go on studying are present like low vision aides and that some treatments may get some results is some cases and we can be among those cases , while addressing that thing are not going to be normal , living in complete darkness is a ' remote' possibility , this family gave their child glasses and I prescribed available treatments with brinzolamide for nystagmus , this child came back after one month playing around the clinic , very naughty , flipping every thing around , I wouldn't mind seeming him trying to get my trial lenses to the ground while me and his parents laughing about the blind child that he was told about by some really cruel doctor , after going to another paediatric ophthalmologist, without low vision aides this child is back to school , his family is happy to the extent they wanted to visits me weekly and were unhappy that I told them we need only 3 monthly visits
Thank you RIri and Deb again
Original Message:
Sent: 11/20/2025 1:51:00 AM
From: Riri Manor
Subject: RE: Ice cream?
You are so right. To say before- if possible- the worst that could have been or the best present now in spite of the infirmity.
I remember a very very old case . Leber opticopathy.The first eye.A 20 years old and his very sad and worried parents knowing by a previous medical opinion it is an optic neuritis. How to tell them ? I said that is a good news he has not at all suspicious of M S–he will never possible get paralysis. Then I told them about Leber but I added that I may be wrong and I told them about Prof William Hoyt and advise them to phone to take an appointment ,to hear his opinion too .Today people are traveling to San Francisco for holydays –I said- you ll do it and also hearing an world best specialist who is also aware of the last researches on the subject before they are published.
Look, it was the same devastating story but they received it in another way, they prepared the journey- ,get used to the idea and after hearing prof Hoyt they knew they did the best possible at that time for they son. Of course it is not that I ve send every case of Leber to the States.In that particular case the parents were so desperate and they had also material possibilities.
In each case in my opinion you must try to found the way to do it as easier as possible for the individual patient standing before you.
Original Message:
Sent: 11/19/2025 3:00:00 PM
From: Sherif Ahmed Kamel Abdelbar
Subject: RE: Ice cream?
This is wonderful , I guess we have to read about psychology of visual loss and how to deal with it and how to motivate about the future , sometimes we have to give the positives before the negatives like today I have two women with NAION and with good VA and bilateral attitudinal defects , while telling then that it cannot be better , I tell then it could have been worse and that it is a blessing that we still have a good ambulatory vision that allows most of the usual activity , not flying of course , those two women are younger than usual for bilateral NAION , one of them is actually seeking 6/6 with her glasses in both eyes but complaining about Lowe field vision and the other is a doctor , that had this because of sudden uterine haemorrhage lowering Hämoglobin to 6 suddenly probably incited by spikes of hypertension , I tried really to give both of them the brighter side while telling them this is persistent problem
Thank you Deb for writing